Author Topic: Fibromyalgia clinic - what happens?  (Read 1376 times)

auntieCtheM

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Fibromyalgia clinic - what happens?
« on: 03 Apr 2012 01:20AM »
Today I convinced a medical person that my fibromyalgia was totally debilitating.  Hooray, at last, after 25 years someone listened to me and actually believed what I was saying.  She offered to refer me to a clinic.

Has anyone been to such a clinic.  What happens?
When I was referred to a pain clinic all that happened was that the Dr gave me a different painkiller whose side effects were appalling and so I stopped taking them.  That was no good at all, complete waste of time.

Is the fibromyalgia clinic the same sort of thing, gives you more pills and leaves you to get on with it?  If so I will not bother going.

hossylass

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Re: Fibromyalgia clinic - what happens?
« Reply #1 on: 03 Apr 2012 02:29AM »
No idea - never been offered one.

Off to bed :)

Sunshine Meadows

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Re: Fibromyalgia clinic - what happens?
« Reply #2 on: 03 Apr 2012 09:40AM »
Auntie,

When I went it was not actually called the Fibromyalgia clinic and I thought I was just going to see an OT at the hospital, but when I got there it was an OT that specialised in Fibromyalgia. Hopefully it will be the same thing for you because there was no poking and prodding, we just talked about the symptoms I had and how to manage my day and also different disability aids. I was asked to keep a diary and in doing so realised just how much pain I was trying to ignore and get on with things anyway. It might sound silly but it was a bit of a shock and did remind me I need to be kinder to me. In a way because I have been ill and disabled for a long time (similar to you) I could not get much out of seeing the OT but I did feel better in a way because it confirmed the diagnosis. That being said I still can't really get my head around having fibromyalgia, my body says yes but my mind says no not another thing wrong with me.


auntieCtheM

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Re: Fibromyalgia clinic - what happens?
« Reply #3 on: 04 Apr 2012 12:46AM »
Hi sunshine,

I do not mind if I am prodded and poked - I'm in pain all the time anyway so a bit more really does not bother me.

I want to go to a clinic so that I end up being improved.  I do not want to talk about symptoms.  Now that really would depress me.  I'm trying very hard to get on with life and do not want to be reminded of how awful I feel most of the time.  Just talking about how to manage etc is really pointless as I have lived with it long enough to know inside out how I react to things - life and medications.

Your information leads me to think that when/if I get this appointment I should contact the clinic and try to find out exactly what they do with their patients.  If I have to get myself organised and trek up to London for a specific time then I would like to feel optimist about the outcome.

As you can see I am going through a 'trough' at the moment, and it is not nice.  Maybe there is someone else will have been to one and can give me a reason for being able to look forward to getting something out of the experience.