Author Topic: Newbie  (Read 4211 times)

Purple Pain

  • Bronze Member
  • ***
  • Posts: 18
Newbie
« on: 28 Mar 2012 10:26AM »

Hi all.....
Am 52, suffer with Depression and have what I lovingly call a 'Hippo Leg'
Am on crutches which I have 'Blinged Up'  >cool<
Am awaiting appointment with a RA Specialist now for my leg, as all other avenues i.e DVT, Water Retention etc  have been ruled out, I am in constant pain (28 pills a day) and my right leg from my hip to ankle is larger than the left! Pain is in lower back, knee and hip and keeps me from sleeping, walking getting in and out of bath etc etc......
My Partner (44 this year) was born with Bi-Lateral Talipes and also has Elhers Danlos Syndrome, he walks with a stick and for long periods and is unable to manage stairs, get in and out of bath without help (usually me helping), stand for long periods or walk very far  :-(
So me now having whatever I have is a big strain on both of us.....
Well..... Thanx for reading this  :-) I am off to peruse the boards, no doubt I will 'pop up' again, as am sure will be needing advice and support.....
Keep Smiling Peeps
 >love< Purple Pain
Whatever you do in life, always give 100%....
Unless you’re donating blood. ;o)
I want to Hi-Five David Cameron.....
In the face....
With my fist =o0

KizzyKazaer

  • Global Moderator
  • Super Hero Member
  • *****
  • Posts: 9158
Re: Newbie
« Reply #1 on: 28 Mar 2012 10:33AM »
Hi Purple Pain, nice to meet you and  >welcome< to OuchToo - hope you enjoy it here  >thumbsup<

Purple Pain

  • Bronze Member
  • ***
  • Posts: 18
Re: Newbie
« Reply #2 on: 28 Mar 2012 10:37AM »
Thank You KizzyKazaer  >biggrin<
I'm sure I will!
Whatever you do in life, always give 100%....
Unless you’re donating blood. ;o)
I want to Hi-Five David Cameron.....
In the face....
With my fist =o0

Sunshine Meadows

  • Global Moderator
  • Super Hero Member
  • *****
  • Posts: 8388
Re: Newbie
« Reply #3 on: 28 Mar 2012 10:42AM »
Purple Pain welcome to Ouch Too. It is nice to see a newbie posting so soon after they joined.
:-)

Hurtyback

  • Charter Member
  • Super Hero Member
  • ******
  • Posts: 5800
Re: Newbie
« Reply #4 on: 28 Mar 2012 10:43AM »
Hello and  >welcome<

ditchdwellers

  • Access All Areas
  • Hero Member
  • *****
  • Posts: 3496
Re: Newbie
« Reply #5 on: 28 Mar 2012 11:06AM »
Hello.  They are a few of us here with EDS and other rheumatology issues, so hopefully we can help you with any queries!


gammagirl

  • Guest
Re: Newbie
« Reply #6 on: 28 Mar 2012 02:33PM »
Hello.

I have EDS and I have close family members with RA and severe depression. The familial RA was why the dx of EDS took so long with me.

Have you had an OT assessment at home recently? By that I mean occupational therapy. My local dept were very helpful and as well as seeing me in clinic, came to the house and gave us lots of useful stuff for getting in and out of the bath etc. Just a thought that even if you've been assessed before, now that you're both struggling a bit, might be worth doing it again. I try to get reassessed whenever I've had big changes in my condition.

I'm sure I'll see you around here - don't hesitate to ask and we'll all try to help.

If it is RA you have, if you haven't been seen by the specialist yet, I'll guess that you're not on any disease modifier drugs. If you're lucky, and I hope you are, one of those might work very well for you and reduce your symptoms. There are a whole range of treatments that treat RA specifically which are not painkillers - they don't work for everyone and you may have to try a few, but with luck one will suit you very well.

gg

NeuralgicNeurotic

  • Super Hero Member
  • ******
  • Posts: 7373
Re: Newbie
« Reply #7 on: 28 Mar 2012 02:34PM »
Hi there Purple Pain >welcome<

You've blinged up your crutches? Do tell!

Purple Pain

  • Bronze Member
  • ***
  • Posts: 18
Re: Newbie
« Reply #8 on: 28 Mar 2012 03:43PM »
Awwww thank you all so much for the warm welcome  >bighugs<  >tah<

Gammagirl; Thanx so much for the advice have not been seen by OT, but will get onto them asap, as we are both struggling.....  >rose<

NeuralgicNeurotic; I have 'blinged' my crutches (after being egged on by friends) using a hot glue-gun and various stuff I used to use for my art work (which I no longer can find the heart to do, due to my depression), all is easily removable if/when I can give them back  >biggergrin<

Am hoping my app comes sooner rather than later, as pain is quite severe even though on loads of meds  >crying<

Ah well could be worse..... I could be David Cameron!  >yikes<
Whatever you do in life, always give 100%....
Unless you’re donating blood. ;o)
I want to Hi-Five David Cameron.....
In the face....
With my fist =o0

suessad

  • Hero Member
  • *****
  • Posts: 879
Re: Newbie
« Reply #9 on: 28 Mar 2012 05:06PM »
Hi PurplePain.  >welcome<

All digits crossed for your early appointment.

NeuralgicNeurotic

  • Super Hero Member
  • ******
  • Posts: 7373
Re: Newbie
« Reply #10 on: 28 Mar 2012 07:14PM »
NeuralgicNeurotic; I have 'blinged' my crutches (after being egged on by friends) using a hot glue-gun and various stuff I used to use for my art work (which I no longer can find the heart to do, due to my depression), all is easily removable if/when I can give them back  >biggergrin<

Nice one! I bought myself a pair of ergonomic grip crutches as a Christmas present, as the ones I was issued with were starting to cause serious problems for my hands. I'm always on the lookout for ways to tart them up a bit. I fitted black Fetterman Tornado Tips to mine in an attempt to cut down on slips and falls, so am considering using black reflective tape to make them stripy, and to make myself more visible after dark. It might look well - but on the other hand, as I have all the artistic talent of a brick, it'll probably end up a complete mess! >crutches<

I hope your appointment comes soon. Trying to juggle pain and depressive illness is a nightmare I can readily identify with. >hugs<
« Last Edit: 28 Mar 2012 08:35PM by NeuralgicNeurotic »

seegee

  • Super Hero Member
  • ******
  • Posts: 5166
Re: Newbie
« Reply #11 on: 29 Mar 2012 09:36AM »
 >welcome< Purple Pain >biggrin<

Purple Pain

  • Bronze Member
  • ***
  • Posts: 18
Re: Newbie
« Reply #12 on: 29 Mar 2012 10:44AM »
Thank You all so much for your kind words and advice, all of which is gratefully received  >bighugs<
 Am waiting to hear from ATOS *spits*  re a date for my medical, which Im petrified about :-(
Will keep you all posted re: hosp app and ATOS XxX
Whatever you do in life, always give 100%....
Unless you’re donating blood. ;o)
I want to Hi-Five David Cameron.....
In the face....
With my fist =o0

Danslatete

  • Charter Member
  • Diamond member
  • ****
  • Posts: 355
Re: Newbie
« Reply #13 on: 29 Mar 2012 11:49AM »
Welcome nice to see were still getting new faces. I love the bit at the bottom of your screen...always give 100% -except when giving blood, made me giggle. Gave me images of the bit on Topgun take of film with leslie neilson, when he gets transfused and the guy goes flat as a pancake. am  waffling.. see you around!  ;-)

sherbs

  • Charter Member
  • Hero Member
  • *****
  • Posts: 1334
Re: Newbie
« Reply #14 on: 29 Mar 2012 09:00PM »
Hi Purple Pain and Welcome to OuchToo   :-)