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Cafe / Re: My Lovely Clothes Repair Lady
« Last post by Sunny Clouds on 13 Jan 2022 07:34PM »
Ugh, what a painful set of conditions.

Cafe / Re: Dog's been poorly
« Last post by Sunny Clouds on 13 Jan 2022 07:23PM »
Well, that shows he's got no social potential.  If he'd gone to Eton and had a successful political career, he'd be hiding in the fridge not the dishwasher.

Cafe / Re: My Lovely Clothes Repair Lady
« Last post by ditchdwellers on 13 Jan 2022 07:18PM »
Don't worry about it Sunny!  I've discovered that the world of headaches is many and varied.
I ended up being referred to the Neurological Hospital in London where I am seen by a team specialising in headaches. The neurologist at my local hospital insisted that all my problems were due to taking pain killers and she said that if I wasn't prepared to stop taking them then there wasn't anything further she could do for me. My rheumatologist was furious!
Anyway, on referral to London I ended up being diagnosed with not only cluster headaches, but idiopathic intracranial hypertension, chronic migraines with auras, and ocular migraines. Nothing was said about my pain meds at all.
It's quite a juggling act keeping my head in one piece, and combined with the sleep deprivation from the narcolepsy and associated symptoms and chronic pain life can certainly be interesting at times!

Cluster headaches are by far the worst headaches I experience out of all of them.
Health and Disability / Re: Covid jab
« Last post by ditchdwellers on 13 Jan 2022 06:59PM »
I've just had a text message inviting me to have my 4th jab this weekend!
More than a bit shocked as I had an allergic reaction to the last one and was advised not to have any further jabs. I think I need to speak to the GP before deciding what to do.
Cafe / Re: My Lovely Clothes Repair Lady
« Last post by Sunny Clouds on 13 Jan 2022 05:09PM »
(Just about cluster headaches, not tailors...)

I'm grateful to a couple of neighbours for explaining to me about cluster headaches a bit over a year ago.  One mentioned having them and I mentioned how I 'also' used to have migraines when I was younger.  No, I was told, they were different things.

I was puzzled.  Surely 'cluster headache' is a name for 'men's migraines', which is a type of migraine that men are prone to?

A colleague at work in the 1990s had told me about his men's migraines and told me they were also called cluster headaches.  When I was a child, I knew a man who had men's migraines but wasn't given another name for them.

I said this next time we met but was told no, they're not the same, and a woman said she also gets cluster headaches.

I rummaged around online.  Yes, once upon a time they were seen as a type of migraine that were more likely to be experienced by men than by women.

I wonder how many people like me that don't get cluster headaches don't realise that understanding's moved on and they're seen as something separate from migraines?

That being siad, this sort of thing is always weird.  Clinical categorisation and jargon. 

(Analogy with mood-related jargon...)

As a youngster, I understood that I experienced 'manic depression' which was a type of 'depression' where you go high/frantic fighting the depression.  It was only a few years ago now that I realised that this had led to misunderstandings at the turn of the century.  When asked what conditions I had, I was supposed to say "I have bipolar" or maybe "I have manic depression" (I'd never heard of 'bipolar') not "I've had bouts of depression."  You only 'have' depression when you're depressed, you 'have' bipolar even when you're well.  Oh, and unipolar mania is still 'bipolar' but unipolar depression isn't, so you 'have' unipolar mania even when you're not manic, even though you don't 'have' unipolar depression when you're not depressed.

So it's like that with things like cluster headaches.  If, like me, you're stuck in the old jargon, it can be baffling until you look it up or have it explained.

Hang on, got it - is there an even more modern term for cluster headaches?  Oucher's migraines?

On a more serious note, I hope your cluster headache(s) is/are easing today.
Cafe / Re: Dog's been poorly
« Last post by ditchdwellers on 13 Jan 2022 10:41AM »
Sorry for not replying to all your lovely comments and the picture looked exactly like he did  :f_laugh: . Poor thing!

He's now back to his usual mischievous self, wanting more walks than ever and getting stuck in the dishwasher!

Cafe / Re: My Lovely Clothes Repair Lady
« Last post by ditchdwellers on 13 Jan 2022 10:37AM »
Apologies for being absent and not responding to replies. Cluster headaches have a lot to answer for!
I too think that many more people are thinking about clothes consumption and fast fashion and are more interested in having items repaired and made over to give them a new look and extend the life of the the item at a relatively small cost.
It also paves the way for talented and skilled individuals to set up working from home in this economy where premises overheads are shocking. I can really see this sort of business taking off.
Health and Disability / Speech to type software
« Last post by Fiz on 12 Jan 2022 06:39AM »
I want to write a lot down that I simply don't have the ability to type. When my daughter was at Uni she had software added to the laptop they gave her that transferred what she spoke to type. Can anyone recommend such software?

And is it possible to when reading it, add in typed bits.

Welfare Rights / Re: Ending free prescriptions for people over 60
« Last post by Sunny Clouds on 11 Jan 2022 08:47PM »
Looking at that list reminds me how utterly bonkers it all is.

I have two conditions I take pills for.  The one entitles me to them for free, but the pills only cost a few quid a year anyway, besides which, if I didn't take them, I'd feel rough but nothing dire would happen.  (Pituitary and thyroid aren't on talking terms, just random slanging matches, so the pharmacist acts as a go-between.)

The other doesn't entitle me to free prescriptions.  I've checked NHS prices (the pills not the scrips) and the pills themselves cost the NHS about £120 year (plus the costs involved in repeating the scrips, dispensing etc.)  If I had to pay for scrips for them, it wouldn't cost me a lot, but let's say I was younger, in work, didn't get free scrips, but was on a fairly low income, I might find myself prioritising other things such as food, fuel, rent, sanitary towels, travel costs to work etc. and skipping the pills.  You could say buy a pre-payment certificate, but you have to be able to afford it up-front.

How much does it cost to keep the likes of me in the loony bin for a fortnight if I go mad or seriously crash moodwise?  Around £3,500 a week, plus the costs involved in spotting I've a problem and getting me there.  In all seriousness, depending on who spotted there was a problem, whom they told etc., that could involve anything from police to councillors to social services to - well, whichever public service people thought to phone or knock on the door of.  Then there'd be some follow-up care.  So we're probably talking at least £10,000. 

Hmm.  Somehow I don't find the sums add up right in terms of what it makes sense for the state to fund.  Still, I didn't get a brilliant grade on my A-level maths, so maybe I missed the lessons on "How to do the sums on spending a bit to save a lot."
Welfare Rights / Re: Ending free prescriptions for people over 60
« Last post by Monic1511 on 11 Jan 2022 01:40AM »
This is an English problem as all prescriptions are free in Scotland,  making them even more means tested is wrong and will lead to an even bigger burden on the NHS as folk will be more unwell by the time they access help.  I looked at the nhs website and this is the information

I know pensioners get more £ than working age people but they are also most likely NOT to claim means tested benefits.  We should be encouraging all of them to claim attendance allowance as it could get them pension credit and then their free tv license  :f_winkeye:

Who can get free prescriptionsYou can get free NHS prescriptions if, at the time the prescription is dispensed, you:
are 60 or over
  • are under 16
  • are 16 to 18 and in full-time education
  • are pregnant or have had a baby in the previous 12 months and have a valid maternity exemption certificate (MatEx)
  • have a specified medical condition and have a valid medical exemption certificate (MedEx)
  • have a continuing physical disability that prevents you going out without help from another person and have a valid medical exemption certificate (MedEx)
  • hold a valid war pension exemption certificate and the prescription is for your accepted disability
  • are an NHS inpatient
  • You're also entitled to free prescriptions if you or your partner (including civil partner) receive, or you're under the age of 20 and the dependant of someone receiving:
  • income-based Jobseeker's Allowance
  • income-related Employment and Support Allowance
  • Pension Credit Guarantee Credit
  • If you're entitled to or named on:a valid NHS tax credit exemption certificate – if you do not have a certificate, you can show your award notice. You qualify if you get Child Tax Credits, Working Tax Credits with a disability element (or both), and have income for tax credit purposes of £15,276 or less
  • a valid NHS certificate for full help with health costs (HC2)
  • People named on an NHS certificate for partial help with health costs (HC3) may also get help.Read more about who can get free NHS prescriptions.Check you're eligible for free prescriptions There's a simple way to find out if you're eligible for free NHS prescriptions and any help with other NHS costs.  Use the eligibility checker.Free prescriptions for certain medical conditions. People with certain medical conditions can get free NHS prescriptions.
  • Medical exemption certificates are credit-card-size cards. They are issued if you have:cancer, including the effects of cancer or the effects of current or previous cancer treatment
  • a permanent fistula (for example, a laryngostomy, colostomy, ileostomy or some renal dialysis fistulas) requiring continuous surgical dressing or an appliance
  • a form of hypoadrenalism (for example, Addison's disease) for which specific substitution therapy is essential
  • diabetes insipidus or other forms of hypopituitarism
  • diabetes mellitus, except where treatment is by diet alone
  • hypoparathyroidism
  • myasthenia gravis
  • myxoedema (hypothyroidism requiring thyroid hormone replacement)
  • epilepsy requiring continuous anticonvulsive therapy
  • a continuing physical disability that means you cannot go out without the help of another person (temporary disabilities do not count, even if they last for several months)
  • Find out more about medical exemption certificates.How to apply for a medical exemption certificate
  • Ask your doctor for an FP92A form to apply for a medical exemption certificate.
  • Your GP will sign the form to confirm that your statement is correct. At your GP's discretion, a member of the practice who has access to your medical records can also sign the form.
  • Your certificate will be valid from 1 month before the date the NHS Business Services Authority receives the application form.
  • If you have a low income, you may be eligible to receive financial help through the NHS Low Income Scheme.  To apply for an HC2 certificate, complete form HC1, which is available from Jobcentre Plus offices or most NHS hospitals. You might also be able to get an HC1 form from your doctor, dentist or optician.  You can also get an HC1 form by calling 0300 123 0849You qualify for a full help HC2 certificate (which includes free NHS prescriptions) if your income is less than or equal to your requirements, or your income is greater than your requirements by no more than half the current English prescription charge.  You qualify for a limited help HC3 certificate if your income is greater than your requirements by more than half the current English prescription charge.  The HC3 certificate shows how much you have to pay towards your health costs. Certificates are usually valid for between 6 months and 5 years, depending on your circumstances.
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