Recent Posts

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Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 07 Dec 2021 09:46AM »
It is shocking.  I wouldn't have thought of writing to the practice manager, though, but that's because my GP has a traditional practice, so the manager would be employed by the GP and all they could do would be to put the letter on their boss's desk for him to deal with.

But if it's one of these new big chain practices taken over by private companies, then I suppose it would go up the non-doctor heirarchy. 
Talk / Re: Disability on Strictly come Dancing and other reality shows
« Last post by Fiz on 07 Dec 2021 08:47AM »
And I am watching last night's programme showing highlights from the previous 24 hours up to the showtime when part of it is live. The daily trial was rather than let the public vote for who should do it they let the contestants choose two to do the trial. There was a bun fight with NB et al saying who should do the trial and David saying that no one should say that someone else should do it and people should put themselves forward voluntarily. The argument was tectchy so Kadeena wanting peace put herself forward to end the argument and volunteered for the trial and she and Louise Minchin absolutely smashed the trial winning all the stars and viewers last night would have seen that before voting and still she didn't get enough votes to stay in the camp. All I can say is that Kadeena gave the show her absolute best and she was brave and determined and a star and was a brilliant contestant.
Talk / Re: Disability on Strictly come Dancing and other reality shows
« Last post by Fiz on 07 Dec 2021 08:12AM »
Well I woke up to a shock, Kadeena was the second contestant voted out of the castle and left last night. For those who don't watch it, the public vote for the person they want to stay in the castle not for the person they want to leave so this means that she had the least amount of the public who are wanting to save her and keep her in the show. Apparently there's been an outcry on Twitter because people can't believe this to be true and think there's been a fix. The show is independently adjudicated so it will be accurate but the outcry shows that the public are surprised that she's not as popular as they expected or they like others less and had expected those others to have less votes than Kadeena.

I wonder if lack of understanding about her disability played any part of why she has left the show so early. She wasn't a winning contestant in my opinion but I am surprised that she has gone so early. I really don't want NB to win but he has a significant fan base so, might. I think David Ginola should win, he is amazing at all the tasks and such a genuinely nice guy too.
Talk / Re: NHS clinic access
« Last post by Fiz on 07 Dec 2021 07:56AM »
I have to say the fact that it was ally's own GP that didn't respond adequately and was totally ignorant of needs totally shocked me. It makes me so grateful for my GP, although I always have been, because she's so good and knows me very well. I think writing to the practice manager might be an idea if feeling able to.
Health and Disability / Re: High blood pressure
« Last post by Sunny Clouds on 06 Dec 2021 11:39PM »
I wish I'd had better menopause care.  I think it's often underestimated how relevant it is to so many health problems.  I admire women who look at how it affects them and take action.  I just sort of gave up because the psychiatrists and gynaecologists just attributed perimenstrual crashes as symptoms of my bipolar disorder.

I wonder how many women have symptoms attributed to loads of other conditions.

It's encouraging when various Ouchers try out various ways of helping themselves, it gives me a sense I should keep doing what I can.

It's a small offering in return, but hugs of thanks to those of you tackling blood pressure for the timely reminder not to give up on basics.  I haven't checked my blood pressure for a while, but I shall start doing so again.


Health and Disability / Re: High blood pressure
« Last post by Sunshine Meadows on 06 Dec 2021 04:51PM »
Just a quick post ... my blood pressure had been around 135 - 100 for a couple or so years. My GP was trying to find suitable blood pressure medication for me when Covid started and  we have not got that sorted yet. I recently started taking Menopace Night and it has helped fatigue and restlessness. It also brought my blood pressure down to around 128 - 93.

I am wondering if cortisol being higher during perimenopause and menopause is why my blood pressure was too high in the first place.

Still shaking too much.

Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 06 Dec 2021 04:04PM »
I was about to leave the house when I got a call on my mobile.  I couldn't work out what it was to begin with, thinking it was a wrong number.  Then I realised it was the clinic about my appointment.  I couldn't work out to begin with whether they were saying they were cancelling my appointment or confirming it but finally worked out they were cancelling it.

I can't get my head round how so many people can't get their heads round the notion that some of us only use mobiles for emergencies and texts and, in my case, taxi service.  Dial.  Incomprehensible speech.  Pause.  I press 1 to be picked up at home, 2 to be picked up where they dropped me off.  I don't need to know what the machine is saying, unless it goes on for longer than usual, which tells me to phone them from my landline to find out what it's telling me.
Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 06 Dec 2021 01:11PM »
Thinking of what Ally goes through, I think if I were sitting with a GP who knew me and I was totally reliant on lipreading, I'd be in tears.  Here's where I'd meet OtE half way on something (but I don't think he'd meet me halfway) which is that while I don't think people should be obliged to use official sign interpreters as he's said here, I do think we need far wider availability of sign interpreters, even if in some places, for want of better, it's a pool of local volunteers for urgent appointments.

I say that as someone who's acted as an impromptu oral interpreter between a neighbour and a doctor.  My knowledge of some languages is basic, so we had to make do with me translating the doctor's English questions into Urdu and translating my neighbour's Punjabi responses into English.  (Sort of like Italian + Spanish or like Dutch + German.)  But it was enough for what was needed to get an urgent visit followed by more professional translation help. 

There also needs to be more recognition by senior staff who set the rules as to people needing help rather than blanket 'go into your appointment alone' stuff. 

I don't think in many places, and I mean even before the pandemic, there's enough recognition that people may need psychological support; or for others, to blend concepts, a 'dementia-speak interpreter' or a 'psychotic delusion interpreter'.  In relation to the latter, in all seriousness, I believe that a lot of psychotic delusions actually make perfect sense if you see them as metaphors for what others perceive as reality.  If you know someone, you can often 'translate' the delusional stuff into the reality it symbolises. 

When I get like this, depressed & stressed => longwinded, I used to be labelled manic and given loads of meds to damp me down, so I got even more depressed, talked even more, and so the circle would continue.  This isn't "I don't get manic", this is "Me rabbiting and going off on tangents is me feeling rough, being depressed and doing my best to cope.  Thank you for helping me, folks, because I can mentally take you with me to my clinic appointment later this week.

And I'm sorry (slightly), Ally, but I'm going to picture you coming with me and if I have any communication problems, teaching me the signs for a range of expletives.  But I know the sign for "It's not my fault for falling over, you barged into me, so stop giving me grief."  I use the traditional two-finger one but I understand the modern one is the middle finger.  Oh, that's not BSL?  Oh well, people seem to understand it anyway.
Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 06 Dec 2021 09:42AM »
I find it difficult the way my hearing aids distort what people say, but thinking of what Ally goes through puts my difficulties in perspective.

I think screens can be really good, although they have to be properly done.  There's a bit of research that seems to suggest that in some workplaces, they've caused problems where there's been enough screening to reduce airflow, but not enough to form a proper barrier, so it leads to what I think of as puddling of the virus.

But you'd think that if someone at national level got their act together, they could have come up with something suitable.   I'm thinking how there are various sorts of hazmat equipment used in relation to other things.  Sort of see-through tent-like things.  I bet in this day and age a sort of cubicle thing would be 3D printable.
Talk / Re: NHS clinic access
« Last post by Fiz on 06 Dec 2021 08:28AM »
Thing is, masks protects others rather than yourself mostly so medical professionals have a duty to protect you by wearing their masks. I totally understand why a professional may choose to write down what they want to say rather than lower their mask due to their concern about wanting to protect you from Covid especially as they are much more likely to be carrying the virus and breathing it out as they are in close contact with so many people. Personally I think there's an argument for someone signing to say that they'd like the health professional to lower their mask and understand that this increases their risk of getting Covid from the health professional but also as there's also a smaller risk of them getting Covid from you then by lowering their masks they are increasing the risk of gaining the virus and passing it on to their following patients so it's not just the risk to you but it increases risk to all of their patients when they do so. I think clear screens are the way to go with a face to face desk for people with hearing difficulties and if they had one such room for consults with hearing impaired patients the GP could move to that pre-booked room to see the individual needing to see their faces which would solve the problem in GP surgeries and at reception area desks but not for dentists who are very up close and personal. I think this pandemic is hardest of all for the hearing impaired than any other group of people. I can't wait for it all to be history  :f_hug:

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