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Talk / Re: Disability on Strictly come Dancing and other reality shows
« Last post by Fiz on Today at 08:12 AM »
Well I woke up to a shock, Kadeena was the second contestant voted out of the castle and left last night. For those who don't watch it, the public vote for the person they want to stay in the castle not for the person they want to leave so this means that she had the least amount of the public who are wanting to save her and keep her in the show. Apparently there's been an outcry on Twitter because people can't believe this to be true and think there's been a fix. The show is independently adjudicated so it will be accurate but the outcry shows that the public are surprised that she's not as popular as they expected or they like others less and had expected those others to have less votes than Kadeena.

I wonder if lack of understanding about her disability played any part of why she has left the show so early. She wasn't a winning contestant in my opinion but I am surprised that she has gone so early. I really don't want NB to win but he has a significant fan base so, might. I think David Ginola should win, he is amazing at all the tasks and such a genuinely nice guy too.
Talk / Re: NHS clinic access
« Last post by Fiz on Today at 07:56 AM »
I have to say the fact that it was ally's own GP that didn't respond adequately and was totally ignorant of needs totally shocked me. It makes me so grateful for my GP, although I always have been, because she's so good and knows me very well. I think writing to the practice manager might be an idea if feeling able to.
Health and Disability / Re: High blood pressure
« Last post by Sunny Clouds on 06 Dec 2021 11:39PM »
I wish I'd had better menopause care.  I think it's often underestimated how relevant it is to so many health problems.  I admire women who look at how it affects them and take action.  I just sort of gave up because the psychiatrists and gynaecologists just attributed perimenstrual crashes as symptoms of my bipolar disorder.

I wonder how many women have symptoms attributed to loads of other conditions.

It's encouraging when various Ouchers try out various ways of helping themselves, it gives me a sense I should keep doing what I can.

It's a small offering in return, but hugs of thanks to those of you tackling blood pressure for the timely reminder not to give up on basics.  I haven't checked my blood pressure for a while, but I shall start doing so again.


Health and Disability / Re: High blood pressure
« Last post by Sunshine Meadows on 06 Dec 2021 04:51PM »
Just a quick post ... my blood pressure had been around 135 - 100 for a couple or so years. My GP was trying to find suitable blood pressure medication for me when Covid started and  we have not got that sorted yet. I recently started taking Menopace Night and it has helped fatigue and restlessness. It also brought my blood pressure down to around 128 - 93.

I am wondering if cortisol being higher during perimenopause and menopause is why my blood pressure was too high in the first place.

Still shaking too much.

Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 06 Dec 2021 04:04PM »
I was about to leave the house when I got a call on my mobile.  I couldn't work out what it was to begin with, thinking it was a wrong number.  Then I realised it was the clinic about my appointment.  I couldn't work out to begin with whether they were saying they were cancelling my appointment or confirming it but finally worked out they were cancelling it.

I can't get my head round how so many people can't get their heads round the notion that some of us only use mobiles for emergencies and texts and, in my case, taxi service.  Dial.  Incomprehensible speech.  Pause.  I press 1 to be picked up at home, 2 to be picked up where they dropped me off.  I don't need to know what the machine is saying, unless it goes on for longer than usual, which tells me to phone them from my landline to find out what it's telling me.
Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 06 Dec 2021 01:11PM »
Thinking of what Ally goes through, I think if I were sitting with a GP who knew me and I was totally reliant on lipreading, I'd be in tears.  Here's where I'd meet OtE half way on something (but I don't think he'd meet me halfway) which is that while I don't think people should be obliged to use official sign interpreters as he's said here, I do think we need far wider availability of sign interpreters, even if in some places, for want of better, it's a pool of local volunteers for urgent appointments.

I say that as someone who's acted as an impromptu oral interpreter between a neighbour and a doctor.  My knowledge of some languages is basic, so we had to make do with me translating the doctor's English questions into Urdu and translating my neighbour's Punjabi responses into English.  (Sort of like Italian + Spanish or like Dutch + German.)  But it was enough for what was needed to get an urgent visit followed by more professional translation help. 

There also needs to be more recognition by senior staff who set the rules as to people needing help rather than blanket 'go into your appointment alone' stuff. 

I don't think in many places, and I mean even before the pandemic, there's enough recognition that people may need psychological support; or for others, to blend concepts, a 'dementia-speak interpreter' or a 'psychotic delusion interpreter'.  In relation to the latter, in all seriousness, I believe that a lot of psychotic delusions actually make perfect sense if you see them as metaphors for what others perceive as reality.  If you know someone, you can often 'translate' the delusional stuff into the reality it symbolises. 

When I get like this, depressed & stressed => longwinded, I used to be labelled manic and given loads of meds to damp me down, so I got even more depressed, talked even more, and so the circle would continue.  This isn't "I don't get manic", this is "Me rabbiting and going off on tangents is me feeling rough, being depressed and doing my best to cope.  Thank you for helping me, folks, because I can mentally take you with me to my clinic appointment later this week.

And I'm sorry (slightly), Ally, but I'm going to picture you coming with me and if I have any communication problems, teaching me the signs for a range of expletives.  But I know the sign for "It's not my fault for falling over, you barged into me, so stop giving me grief."  I use the traditional two-finger one but I understand the modern one is the middle finger.  Oh, that's not BSL?  Oh well, people seem to understand it anyway.
Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 06 Dec 2021 09:42AM »
I find it difficult the way my hearing aids distort what people say, but thinking of what Ally goes through puts my difficulties in perspective.

I think screens can be really good, although they have to be properly done.  There's a bit of research that seems to suggest that in some workplaces, they've caused problems where there's been enough screening to reduce airflow, but not enough to form a proper barrier, so it leads to what I think of as puddling of the virus.

But you'd think that if someone at national level got their act together, they could have come up with something suitable.   I'm thinking how there are various sorts of hazmat equipment used in relation to other things.  Sort of see-through tent-like things.  I bet in this day and age a sort of cubicle thing would be 3D printable.
Talk / Re: NHS clinic access
« Last post by Fiz on 06 Dec 2021 08:28AM »
Thing is, masks protects others rather than yourself mostly so medical professionals have a duty to protect you by wearing their masks. I totally understand why a professional may choose to write down what they want to say rather than lower their mask due to their concern about wanting to protect you from Covid especially as they are much more likely to be carrying the virus and breathing it out as they are in close contact with so many people. Personally I think there's an argument for someone signing to say that they'd like the health professional to lower their mask and understand that this increases their risk of getting Covid from the health professional but also as there's also a smaller risk of them getting Covid from you then by lowering their masks they are increasing the risk of gaining the virus and passing it on to their following patients so it's not just the risk to you but it increases risk to all of their patients when they do so. I think clear screens are the way to go with a face to face desk for people with hearing difficulties and if they had one such room for consults with hearing impaired patients the GP could move to that pre-booked room to see the individual needing to see their faces which would solve the problem in GP surgeries and at reception area desks but not for dentists who are very up close and personal. I think this pandemic is hardest of all for the hearing impaired than any other group of people. I can't wait for it all to be history  :f_hug:

Talk / Re: NHS clinic access
« Last post by Sunny Clouds on 05 Dec 2021 11:41PM »
I'm lucky that the GPs in my usual practice are good.  You know the GPs in your practice and what they're usually like so I'm not challenging your judgement of the GPs you know.

However, in general, I do have some sympathy with GPs over masking, and I say that as someone who, whilst not as dependent as you are on lipreading, am heavily reliant on it. 

You say do a lateral flow test and that's logical but sadly they wouldn't know whether you had. 

GPs are under so much pressure that not only are GP numbers still decreasing, more and more GPs are resigning from partnership to take salaried jobs, which in effect means they can limit their hours and get less aggro.

The BMA did some research last summer and found that over half the two thousand GPs who responded said they have mental health conditions such as anxiety, stress, burnout etc.

You may say well doctors are stressed anyway, hence the horribly high suicide rates in the profession even before the pandemic, but the aggro they have been getting during the pandemic, like the GP in Manchester who recently had his skull smashed by an angry patient, takes its toll.

Meanwhile, they see how people with covid-19 can suffer, and they can read what doctors with long covid say they're going throuh, and they can read what doctors with ME/CFS say about what they go through, and be frightened.

What I find difficult about all this is that I think that it would have been perfectly feasible for the government, instead of lining the pockets of their mates with scandalously high sums for basic PPE, a lot of it unusable, had kitted doctors out with really good stuff, including, by now, adequate supplies of masks with clear panels in the middle to facilitate lipreading.

Meanwhile, over time I've been asking various health professionals and receptionists etc. a particular question and the response is consistent.  I ask whether there's a field on the screen that first comes up when they type in your name that contains information about your communication or access needs.  Everyone I've asked has said no.  It's expletive ridiculous.

So as I say, you know your GP, and what he did or didn't already know about you and what you'd normally, reasonably expect.  I trust your judgement on that.

By contrast, I think a high proportion of GPs and other health professionals are on a hiding to nothing over this.

I'm still dreading my appointment next week in a secondary care clinic.  I'm less fussed about whether they're ok to take their mask down than whether they're ok to repeat, gesture, write etc.  But it's the same underlying problem.

Big hugs.

Talk / Re: NHS clinic access
« Last post by ally on 05 Dec 2021 10:30PM »
Masks are starting to  freak me out.  I wasn’t expecting to get an apt at the surgery.  However, they decided to see me, as I can’t have a telephone consultation.  Unfortunately, the GP who I’ve seen before decided not to remove his mask.  I sat there trying to tell him I couldn’t understand him.  That didn’t register, and, he continued to talk.  The mask was moving so I knew he was speaking to me.  When I didn’t  answer, or, speak to him, he tried again.  By this time, I was ready to walk out of the door. Then, hallelujah, he lowered his mask, and, asked if I could read his lips. 

My deafness, and, audiology chart is on the computer system.  The audiology chart is more or less a flat liner, so, why would he presume I was able to hear him?  Sometimes, I wonder why GPS, receptionists etc have little common sense when dealing with the deaf.  The dentist wouldn’t lower her mask either.  She wrote what she was saying down on paper.  If the NHS GPS etc are so afraid of covid. Why don’t they ask patients to have a lateral flow test before the appointment?  I took covid tests before both appointments above.  The test kits are free, and, easy to use.  It would save so many problems, especially for the deaf.
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