Author Topic: ESA 50 Form and Conversion Disorder.  (Read 5697 times)

Richard_D

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ESA 50 Form and Conversion Disorder.
« on: 16 May 2016 01:12PM »
Got the dreaded brown white letter at the end of last week. >runforthehills<

Does anyone on this forum have experience of filling out an ESA 50 who has Conversion Disorder. There is a section in the ESA 50 form in the physical capabilities section which asks about "staying conscious when awake" and asks a question about epileptic seizures and diabetic hypos. This seems like the closest box to put the information about Conversion Disorder and Psychogenic Non-Epileptic Seizures but as the cause of this is not physical and the resulting symptoms appear in a physical way I am not sure where the right place to put this information.

Would I still be able to put the information down in the physical section if I write a not underneath explaining the confusion and explain that the section box appears to be the most appropriate place to put this information in?


Information about Conversion Disorder.

Conversion disorder, also called functional neurological symptom disorder, is a condition in which you show psychological stress in physical ways.

Conversion disorder symptoms may appear suddenly after a stressful event or trauma, whether physical or psychological. Signs and symptoms that affect movement function may include:
•Abnormal movement, such as tremors or difficulty walking
•Loss of balance   â€¢Seizures or convulsions   â€¢Episode of unresponsiveness


Episodes of conversion disorder are nearly always triggered by a stressful event, an emotional conflict or another mental health disorder, such as depression.

http://www.mayoclinic.org/diseases-conditions/conversion-disorder/basics/risk-factors/con-20029533

Should this thread be in the Welfare section?
« Last Edit: 16 May 2016 01:33PM by Dark_Divinity »
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Monic1511

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Re: ESA 50 Form and Conversion Disorder.
« Reply #1 on: 16 May 2016 09:26PM »
OK DD I will give this a go as it is really my job but bear with me if I don't relate to your own situation.

You shouldn't answer it varies in any section in my opinion as that means you can do it some of the time.
You will need to explain to DWP that the condition affects you more than 50% of the time. Explain what your like in the episodes and if you have a diary that shows how often your affected or have an episode please include it,

I'll do the headings and give a guess answer
Mobilising - when I have a episode I have no co-ordination so cannot safely mobilise more than 10 steps without putting myself at risk.

Sitting & standing - not sure if this is appropriate
Absence or loss of control of the bladder - does this affect you

Consciousness - I have episodes of altered consciousness x number of times per week, I am a danger to myself as I have no control of my body

If you have problems retaining new information put that in the mental health section - sorry I am not sure if that's helpful or not but I think it will depend on how often you have the episodes
the descriptors are here http://www.tameside.gov.uk/esa/wca   

NeuralgicNeurotic

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Re: ESA 50 Form and Conversion Disorder.
« Reply #2 on: 16 May 2016 10:00PM »
Good luck with the form, DD >hugs< >x-fingers<

Hurtyback

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Re: ESA 50 Form and Conversion Disorder.
« Reply #3 on: 17 May 2016 10:33PM »
DD  >hugs<

Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #4 on: 18 May 2016 03:35PM »
Health Conditions and how they affect me

  Hypothyroidism (Under-active Thyroid Disease)

• Fatigue – Feeling more than I should for someone of my age and not being be to complete all the tasks I have to do.
• Low Stamina
• Joint Pain and Aches
• Muscle Pain and Cramps.


  Depression

• Feeling like simple things are more difficult to cope with.
• Taking longer to get to sleep and sleeping for longer than normally needed.
• Taking longer to get up and out of bed
• Avoiding people, cutting myself off from people.
• Feeling numb and empty.

  Anxiety

• Feeling tense and nervous.
• Having a sense that something bad is going to happen.
• Difficulty in concentrating on that I need to do.
• Worried about leaving home to go out and do things that I need to do like pay my bills, top-up energy meters, get food and drink. Delaying going out.

  Paranoid Thinking

• Mistrustful and suspicious of people
• I keep the curtains closed at home to avoid bringing myself to greater attention to the people around me who I think are monitoring me.

• Feeling like I am being tracked or followed when I am out in public and that my activities are being scrutinised and noted down as part of an information gathering agenda against me to twist and use the information against me

• I have an times where I think my thoughts are leaking out of my mind and into the area around me and that the people around me are hearing my thoughts as they when they are near me.

• Feeling like people are staring at me and watching me I am away from my home out in public.

  Dissociative Disorders

• Dissociative Disorder – Feeling uncertain about who I am (my identity), vague memories of  past events and having a sense that there are gaps in my memory. Feeling like I don’t have all the memories of past events to properly recall and understand what happened in the past events.

• Depersonalisation – Feeling detached from myself and my emotions. Feeling unreal like I am not a real complete person.

• Derealisation – The world around me doesn’t feel real, it feels like a strange distorted soft dreamscape when time is slowed and warped. The people around me feel fake like they are robots or some artificially created copy of a generic person.


  Conversion Disorder (A condition when mental health issues like stress and anxiety manifest as physical symptoms).

• Psychogenic Non-Epileptic Seizure Disorder - When under stress and anxiety I have events which feel and look like Epileptic Seizures. My Mental Health Nurse says that these events are not of a neurological nature and that they could be the result of stress anxiety and repressed psychological distress from buried traumatic events from my past.

Uncategorised Symptoms

Balance disturbances and dizziness – sensation that the floor is shifting underneath my feet. Lift drop sensation when I feel like I am slowly rising up and then quickly falling as if I am in a broken lift that is falling down.

Write a series of paragraphs about your life.

I have no contact with anyone in my family as they are disordered and abusive. I am living along in a new area far away from where I grew up and used to live. To protect myself from them and anyone who they are using to keep track of me and gain information on what I am doing, who I might be talking to and who I might be making friends with.

I have no friends, family or support network of people in the area when I live.

On an average day…. Talk about… Food Shopping? Topping up electric and gas meters? Getting washed and dressed? Leaving the house? Paying bills? Sorting out home delivery for food at library? I have no internet at home.


On a worst day I have difficulty getting sleep due to anxiety and sleep for longer than normal. I take longer to get up and out of bed. I don’t have a wash and change into clothes. I keep the curtains closed and stay home. I avoid answering the front door when someone comes and knocks. I stay quiet so that they think I am not home and go away.

 


I Will Be Filling In The Rest Of The Form In Reference To My Worst Days.

This is some of the information I have written up. I know it is a lot to ask but if anyone has the time and spoons to have a look through it and offer some helpful suggestions and feedback I would be most grateful.   >hugs<  >chocolate<
« Last Edit: 18 May 2016 04:15PM by Dark_Divinity »
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Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #5 on: 18 May 2016 04:21PM »
I am currently working on some of the ESA 50 Questions and I am going to be ringing up my local Citizen's Advice Bureau to talk to them and see if I need can make an appointment to see someone to go over the information I am going to be writing down on the form.
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Monic1511

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Re: ESA 50 Form and Conversion Disorder.
« Reply #6 on: 18 May 2016 08:27PM »
Hi
I think you should add that to the form and if you can get help from CAB please do so
take care
Monic

Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #7 on: 20 May 2016 12:50PM »
Hi
I think you should add that to the form and if you can get help from CAB please do so
take care
Monic

Okay, I will bring all the information I am planning to put down on the form and go over it with someone from Citizens Advice Bureau before writing anything on the form.
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Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #8 on: 20 May 2016 12:51PM »
Physical & Mental Capabilities Questions.

Part One: Physical

Q1) Moving around and using steps. Tick it varies box?

 After I have a seizure-like event I have difficulty with co-ordination and balance so I cannot safely walk around by myself without the risk of injury from a trip or fall.  After an event I feel exhausted and disorientated. This section has been filled out in reference to my worst days.

Q2) Standing and sitting. Ticked box, go to next question.


Q3) Reaching. Ticked box, go to next question.

Q4) Picking up and moving things. Ticked box, go to next question.

Q5) Manual Dexterity (using your hands). Ticked box, go to next question

Q6) Communication (speak, write, type). It varies Box?

During a non-epileptic seizure event I am unable to speak to the people around me, write or type any form of communication to them. Afterwards while I am recovering I have some difficulty in communicating a simple message to them due to confusion and fatigue.

Q7) Communication (hearing and reading).  It varies Box?

When I am stressed out or fatigued I dissociate from what is going on around me. The sounds around me and people talk become distant and hard to hear and understand. The dissociative episodes affect my sensory functioning which causes my processing of sound to become muffled and mixed up. It causes my vision to become distorted and unfocused which gives me some difficulty in understanding what people are trying to tell me. This section has been filled out in reference to my worst days.

Q8) Getting around safely. Problems with your vision. Ticked box, go to next question.

Q9) Control over Bladder and Bowels. Ticked box, go to next question.

Q10) Staying conscious when awake. Less than monthly box.

When I am stressed and sleep deprived I experience non-epileptic seizure events where I experience an altered level of consciousness and lose control over my body.  I feel a sense of dread before the events happen which gives me time to stop what I am doing and sit down on the floor. After an event it can take me awhile to recover. For a few hours after I have recovered I still have difficulty with concentration and awareness.
The last time I had one of these events was in public around people. It was rather scary and embarrassing especially afterwards while I    was recovering.
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Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #9 on: 20 May 2016 12:54PM »
Part Two: Mental, Cognitive and Intellectual

Q11) Learning how to do tasks. Ticked box, go to next question.

Q12) Awareness of Hazards. Ticked box, go to next question.

Q13) Starting and finishing tasks. Sometimes box.

When I am particularly depressed it can take me twice as long to complete tasks due to low motivation and my attention drifting away from what I supposed to be doing. One time when this happened I started doing the washing up which had been mounting up over the days.

I left the plates and cutlery in the sink, my attention drifted and I assumed that I completed the task and put everything away. I didn’t and the next day I had nothing clean to eat off. I had to turn the boiler on again the following day to finish the washing up which I was supposed to do the previous day. I have done this with clothes as well and ended up with no clean underwear or clothes to wear.

Stressed and anxious over leaving the house with dirty, smelly clothes. This section has been filled out in reference to my worst days.

Q14) Coping with changes. Coping with small changes with sufficient notice. It varies Box. Coping with unexpected small changes with no or little notice.  No Box.  [ The medical services handbook states that it would be unlikely to apply to anyone who has managed to attend the medical assessment alone].

Sometimes small changes with little notice cause me anxiety which causes my mind to race and then I get confused and my mind goes blank.

Q15) Going Out.  Can you leave home and go out to places you know. No Box. Can you leave home and go out to places you don’t know. No Box. 

When I am  particularly depressed or feeling very paranoid or anxious I don’t leave my home or engage in any activity while I am home that signals to the people around me that I am at home due to anxiety and fear that I am being monitored. I keep the windows and curtains closed, avoid doing activities that make too much noise.  This section has been filled out and ticked in reference to my worst days.

Q16) Coping With Social Situations. Can you meet people you know without feeling too anxious or scared? No Box? Can you meet people you don’t know without feeling too scared or anxious? No Box? [ The medical services handbook states that it would be unlikely to apply to anyone who has managed to attend the medical assessment alone, they will not meet this descriptor]. 

When I am feeling very depressed, paranoid or anxious I don’t go out of my home. I don’t go out to socialise with people that I know or anyone else who I either don’t know very well or don’t know at all. I am not someone to goes out to parties or social events. I have no friends and family. I don’t know anyone in the area where I live. I stay at home by myself. This section has been filled out and ticked in reference to my worst days.

Q17) Behaving in an appropriate way which is acceptable to the people around you or in a public setting around other people. Behaving in a way that does not upset, scare or offend people. Ticked box, go to next question.

Q18) Eating and Drinking. Getting food and drink to your mouth and completing the process of eating and drinking it without help from another person. Ticked box. End of Questions.
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Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #10 on: 20 May 2016 12:56PM »
ESA 50 Medications

I am on Medication for an Under-active Thyroid condition. I have been prescribed Levothyroxine tablets to take. I am currently on 25 micrograms a day in order to keep my thyroid levels within an accepted range of normal functioning.

I am currently self-medicating with over the counter products to help deal with some of the issues that I experience. The products I use are more natural and have less side-effects that the medications that have been prescribed to me in the past. List the products I have been using and state for each product the reason for its use.

In the past I have been prescribed medications for depression, sleep issues and anxiety.
I have been prescribed  various medications in the past for mental health issues. Here are some of the medications I remember taking :-
  • Name of prescribed medication and the reason why it was prescribed to me.

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Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #11 on: 24 May 2016 05:04PM »
Hi
I think you should add that to the form and if you can get help from CAB please do so
take care
Monic

Thanks.
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Monic1511

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Re: ESA 50 Form and Conversion Disorder.
« Reply #12 on: 24 May 2016 10:25PM »
Hi DD,
We always say don't tick it varies as that gets you zero points, it varies means you can do the task 50% or more of the time,  I know that's confusing but unfortunately that's how the dwp assessor so mark the form.  What I Do is tick the no box and explain I cannot do the task while recovering from a seizure or disassociated state and in the back page explain how often you have these episodes / seizures,  sorry if that's not helpful just in from work & it's a bit late for me take care
Monic

Richard_D

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Re: ESA 50 Form and Conversion Disorder.
« Reply #13 on: 26 May 2016 03:31PM »
Finally completed the form and sent it off under Track and Trace.

I get some help from someone at CAB and they double checked most of the form and the addition information I included.

Thank-you some much for your help Monic.

 >chocolate<  >hugs<

A dragon has been slayed... >stickhorsey<
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Hurtyback

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Re: ESA 50 Form and Conversion Disorder.
« Reply #14 on: 26 May 2016 04:56PM »
Well done D-D!  >hugs<