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Talk / Re: Fiz
« Last post by Sunshine Meadows on 18 Jul 2022 12:15PM »

I love that poem and it is so appropriate to Fiz's passing thank you  :f_peacedove: :f_peacedove: :f_peacedove:

I was thinking how Fiz's old dog the golden retriever would have met her over the rainbow bridge and together they would be running, dancing and playing. Strange thing is I can't remember the name of the dog, so strange.
Talk / Re: Fiz
« Last post by lankou on 18 Jul 2022 11:03AM »
Do Not Stand at My Grave and Weep
Author Unknown

Do not stand at my grave and weep,
I am not there, I do not sleep.
I am in a thousand winds that blow,
I am the softly falling snow.
I am the gentle showers of rain,
I am the fields of ripening grain.
I am in the morning hush,
I am in the graceful rush
Of beautiful birds in circling flight,
I am the starshine of the night.
I am in the flowers that bloom,
I am in a quiet room.
I am in the birds that sing,
I am in each lovely thing.
Do not stand at my grave and cry,
I am not there. I do not die.

This poem is in the public domain.[/i][/color]
Talk / Fiz
« Last post by Sunshine Meadows on 18 Jul 2022 10:10AM »
The other day I noticed Fiz’s Facebook had been reactivated and discovered that Fiz died in the Spring of 2022 and her funeral was in May. I have no more details to give.

Over the years Fiz helped and supported many people on Ouch Too. Her posts on service user issues often showed the real life struggles of people who need help.From time to time Fiz would be too poorly to post messages here but she always return to us.

Ouch Too is mostly quiet these days so there might not be a lot of replies to this thread so it’s important that those who can reply do so.

Fiz I will miss you  :big_hugs:   :f_peacedove: :f_peacedove: :f_peacedove:
Talk / Re: Hot Weather
« Last post by Sunny Clouds on 16 Jul 2022 09:20PM »
I feel really sorry for people that feel the heat.  I've just come back from a walk and I'm feeling a bit hot and I can't help but think of all those people out there that find heat uncomfortable and my heart goes out to those that are struggling.
Talk / Re: Hot Weather
« Last post by KizzyKazaer on 16 Jul 2022 09:05PM »
Monday looks like the direst day of this heatwave with forecasters warning of 40C for parts of the country, so for anyone living in the worst-affected areas, stay safe and thank goodness it should all be over by Wednesday...
Welfare Rights / Re: How to Fill in a PIP Review Form
« Last post by KizzyKazaer on 16 Jul 2022 09:03PM »
I wasn't aware of the Pipinfo site - thank you, Ally  :thumbsup: (and thanks Sunshine for your positive vibes!)
Welfare Rights / Re: How to Fill in a PIP Review Form
« Last post by ally on 14 Jul 2022 10:15PM »
Look at the Pipinfo site which gives you an idea on new case laws,  how to interpret them, and, general help.   Don’t forget to list aids and appliances.  Explain why you need them etc.  for example, an adjustable chair in the kitchen, because you can’t stand for any length Of time etc.
Can You do activities SAFELY in a manner unlikely  to cause  harm to the claimant. Or, to another person either during or after completion of the activity
REPEATEDLY. Means as often as the activity being assessed is reasonably requires to be completed and
IN A REASONABLE TIME PERIOD..  Meaning no more than twice as long as the maximum period a person without a physical or mental condition which limits that persons ability to carry out the activity in question would normally take to complete that activity
I am sorry you did not get to the UK Munroes  :heart:

There is thank goodness a lot m  ore support and information online than there was back when I was young and wet to the reference library and looked in BIg books to better understand CP. For me fear of the unknown can be a awful thing so on this occasion Dr Google really helped.

Welfare Rights / Re: How to Fill in a PIP Review Form
« Last post by Sunshine Meadows on 14 Jul 2022 03:50PM »
 :big_hugs: :f_peacedove: :f_peacedove: :f_peacedove: :f_smiley: :biggrin:

The big grin is for when you get a good result from sending in your PIP renewals.
Health and Disability / Re: Fructose Intolerance / Malabsorption
« Last post by ditchdwellers on 14 Jul 2022 10:51AM »
I completely agree with you both.

It's really hit home to me since my last PIP application that I've been diagnosed with five new conditions and I'm undergoing investigation for another. All in the space of four years.
At each new diagnosis I kind of shrug my shoulders and think "oh well, another one to add to the list" and move on. I just take the meds, adjust my treatment plan, diet, etc, and that is that. I might have a bit of a 'bloody typical ' moment with my husband but I certainly don't make a song and dance about it as to me, it's just another day.

I guess for people who are not living with chronic illness or disability then the thought of being diagnosed with something is a big deal, especially if it requires a lifetime of treatment. It's a lot to adjust to and it's something that we, as disabled people,  can become used to in a peculiar sort of way.

I remember when I was first given my diagnosis of Ehlers Danlos Syndrome I was relieved but devastated at the same time, as this meant that my long held plans of conquering all the UK Munroes were now not going to be fulfilled. I definitely went through a sort of grieving process for my lost life, before I bounced back out the other side and accepted my limitations. As you can see, I'm completely over that stage now!

But it's a very interesting discussion to have.
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