I feel really sorry for people that feel the heat.  I've just come back from a walk and I'm feeling a bit hot and I can't help but think of all those people out there that find heat uncomfortable and my heart goes out to those that are struggling.

I wasn't aware of the Pipinfo site - thank you, Ally  (and thanks Sunshine for your positive vibes!)

I am sorry you did not get to the UK Munroes 




There is thank goodness a lot m  ore support and information online than there was back when I was young and wet to the reference library and looked in BIg books to better understand CP. For me fear of the unknown can be a awful thing so on this occasion Dr Google really helped.

I completely agree with you both.


It's really hit home to me since my last PIP application that I've been diagnosed with five new conditions and I'm undergoing investigation for another. All in the space of four years.
At each new diagnosis I kind of shrug my shoulders and think "oh well, another one to add to the list" and move on. I just take the meds, adjust my treatment plan, diet, etc, and that is that. I might have a bit of a 'bloody typical ' moment with my husband but I certainly don't make a song and dance about it as to me, it's just another day.


I guess for people who are not living with chronic illness or disability then the thought of being diagnosed with something is a big deal, especially if it requires a lifetime of treatment. It's a lot to adjust to and it's something that we, as disabled people,  can become used to in a peculiar sort of way.


I remember when I was first given my diagnosis of Ehlers Danlos Syndrome I was relieved but devastated at the same time, as this meant that my long held plans of conquering all the UK Munroes were now not going to be fulfilled. I definitely went through a sort of grieving process for my lost life, before I bounced back out the other side and accepted my limitations. As you can see, I'm completely over that stage now!


But it's a very interesting discussion to have.