Ouch Too

Forum => Health and Disability => Topic started by: suessad on 12 Oct 2019 08:56AM

Title: Sunflower Lanyard
Post by: suessad on 12 Oct 2019 08:56AM
Not sure if this has been mentioned before but, as more places are starting to use the system. I thought I would give the helpful link.

https://www.hiddendisabilitiesstore.com/?fbclid=IwAR1y8eSC0B8zi01wkK9pk6JYZT4qbUPfqvRZ9rBHCrnzaSDgAqgr4lONOU0
Title: Re: Sunflower Lanyard
Post by: Sunshine Meadows on 13 Oct 2019 09:58AM
I had not heard of this, it is a good idea and a sunflower is friendly and cheerful.
Title: Re: Sunflower Lanyard
Post by: auntieCtheM on 13 Oct 2019 05:39PM
Oh yes, it seems that at airports you can bypass the queues if you wear one.
Title: Re: Sunflower Lanyard
Post by: suessad on 15 Oct 2019 07:51AM
Sainsburys have reportedly joined. Should make life easier in the Christmas queue. >thumbsup< 
Title: Re: Sunflower Lanyard
Post by: ATurtle on 27 Oct 2019 07:02PM
Poster spotted on the platform at Hastings Station, so Southeast Rail are adopting it.

If I'm not to tired out to remember, I'll ask at Bexhill on my way home tomorrow if Southern Rail are raking it up.

I would have put a picture up, but something is not letting me.

BTW on the site that SueSad posted you can buy the lanyards, plus cards to hang on them which have spaces for your name, Emergency Contact Details and your hidden disability, and I would suggest buying the covers to go over the card as it will a) protect the writing and b) stop the hole on the card pulling through.
Title: Re: Sunflower Lanyard
Post by: Sunshine Meadows on 15 Nov 2019 09:51AM
Quote
Emergency Contact Details and your hidden disability, and I would suggest buying the covers to go over the card as it will a) protect the writing and b) stop the hole on the card pulling through.
Good idea  >thumbsup<


There was a item on this on the BBC2 Victoria Derbyshire program the other day and they showed the lanyard and explained its use. There were three disabled people and a representitive from Marks and Spencers all taking about the benefits of people wearing the lanyard and talking about some of the countries  companies taking part already.
Title: Re: Sunflower Lanyard
Post by: Fiz on 13 Jan 2020 07:32AM
I have a sunflower lanyard. It was posted to me free by a North London train company. I've worn it on trains and so far haven't noticed any difference in the help that I  have received but the lanyards existance is evidence that hidden disabilities are becoming more widely recognised which is excellent
Title: Re: Sunflower Lanyard
Post by: Sunny Clouds on 14 Jan 2020 01:33PM
As an aside on emergency details...

Not instead of putting them on a Sunflower Card, but as well...

I carry my disabled bus pass, usually clipped to my waistband but sometimes in a pocket, and on the reverse (visible on the back of the holder I've got it in) is a card with key details including NHS number and GP name and phone number.

On one occasion a couple of years ago when I was in hospital being checked out for concussion, I found as I left that they'd found my card and put it on the counter next to my chart. 

So if you have something that would be quickly spotted by someone helping when you can't communicate or can only communicate in a limited fashion, it's worth also putting the details there.

Which brings me full-circle to the Sunflower Lanyards because for those that feel comfortable wearing them, even without additional info on them, my guess is that they'd also be useful if you have an accident to warn emergency personnel that you have at least one hidden disability.
Title: Re: Sunflower Lanyard
Post by: Fiz on 05 Feb 2022 01:36PM
The card in my plastic lanyard sleeve fell out while I was in B&Q. I realised as soon as I was back at my car and thought briefly about going back to look for it but pain stopped me and I just didn't have the spoons. I am upset as it has my full name on it and my physical and mental health conditions written on it which is a lot of information to have lying around somewhere.


I have ordered a new plastic printed card from the invisible disabilities website to go in the plastic sleeve. This time I am only choosing to provide my first name and I have chosen a multiple disabilities card and have listed my four spinal conditions and I am not mentioning any mental health problems. I will secure it far more securely in the plastic sleeve so it doesn't fall out! I have used the card regularly always because of my spine conditions make it painful to stand or walk, never because of mental health problems so this makes sense to me. My first name is all that people need to know. Ho hum! Lesson learnt! But as it has been very useful I have ordered another. The new card has my photo on it too. Very updated from the old piece of card you used to write on!
Title: Re: Sunflower Lanyard
Post by: Sunny Clouds on 05 Feb 2022 04:12PM
Is there some way of securing the card in the sleeve, or even of replacing the standard sleeve with a more secure cardholder? 

I must admit I'd hesitate to wear a lanyard these days, but that's because where I live (and I'm not assuming it's like this in other places) lanyards are being used by people who aren't wearing masks on buses etc. as a way of saying they're exempt and I think that in many places people now think sunflower lanyards are specifically about masks.

Sadly,  in some places it's very evident that there are quite a few people who are just faking it.  I base this not on a quick glance at people, but on overhearing what they say (boastfully loudly) and what people say in groups.  E.g. in local area, groups of certain sorts of people laughing about making sure everyone in the group has a lanyard so they don't have to bother with masks.

That then has the unpleasant knock-on of giving people in some places the notion that sunflower lanyards are just about masks and the perception that they are frequently or typically just a sham.

Some of us still remind ourselves every time we see one not to make assumptions, but not everyone does that, I think. 

I used to feel angry about this sort of thing, but now I feel more weary.  For a while in the pandemic, I thought how good it would be if instead there was an official mask exemption scheme with official badges or whatever, but then thought it'd be assessed by the usual greedy, nasty government contractor companies, and people would soon work out how to fake the badges anyway.

Sudden thought - imagine if there'd been a campaign where maskwearers entitled to lanyards had taken care always to wear a lanyard plus a badge saying something like "I'm entitled to the lanyard.  Some people aren't.  You can't tell which by looking."

Meanwhile, I wonder how long it will be before someone has to come up with an alternative to the sunflower lanyard, something that is explicitly not about mask wearing, and launched with advertising, which would make people in places like mine more aware of invisible disability and the need to be helpful.
Title: Re: Sunflower Lanyard
Post by: Fiz on 05 Feb 2022 04:41PM
Yes I will be securing the new card inside the plastic sleeve this time so it won't fall out.


All legislation regarding Covid restrictions ends on March 26th which is days away so not only will no one need to wear a mask if they don't want to but people can walk around in crowded places with Covid as there'll be no need to self isolate if you have it. So the days of people using the sunflower invisible disabilities lanyard to avoid mask wearing are about to be obsolete so it can return to its original use of indicating someone has an invisible disability and may need adjustments or assistance.
Title: Re: Sunflower Lanyard
Post by: Monic1511 on 05 Feb 2022 08:08PM
That’s true for England, not sure about the devolved administrations.  Wee Nicola doesn’t seem to want to relinquish control as we still have masks on transport
Title: Re: Sunflower Lanyard
Post by: Sunny Clouds on 05 Feb 2022 11:02PM
It's also the case that in England, there is nothing to stop a service provider requiring the use of masks to enter their premises, travel on their transport, use their services at home etc. as a matter of civil contract, provided that the service provider makes reasonable adjustment for people who, by reason of being disabled, cannot wear one.   Where I am, various bus companies have made it a contractual requirement to wear a mask on their buses at times during the pandemic when it has not been a criminal offence not to.

Further, I take a different view as to future need, since I'm not convinced we won't have a new variation in sars-cov-2 and/or outbreaks of different viruses that would give rise to a need for future restrictions.  But maybe I'm unduly pessimistic.
Title: Re: Sunflower Lanyard
Post by: Fiz on 06 Feb 2022 07:46AM
Yes companies may request customers wear a mask and refuse to provide the service if they don't but they'll lose custom. Companies most likely to request customers wear masks are on public transport as that's where risks are highest and people have limited choices if they don't use the service but I think this will rapidly reduce in other businesses once legislation ends. I've rarely been in shops but this week have been in B&Q, Lidl and the pharmacy and I was the only customer in all three of those places wearing a mask though all the staff were wearing them. I was surprised to see all those faces especially in the pharmacy. I think we have hit a weariness over it all generally and admit that despite being in the group 4 vulnerable and previously shielding, I have had enough of it too.


Coronaviras has been around for decades. There's a big scare in the north of England about dogs getting sick with Coronaviras which is tabloid rubbish because dogs have had Covid for decades too. 9% of kennel cough is Coronaviras and that's been commonplace as long as I can remember. Hopefully the human form will continue to diminish in severity and become the background virus circulating that it has been for many years.
Title: Re: Sunflower Lanyard
Post by: Sunny Clouds on 06 Feb 2022 02:08PM
Coronavirus isn't a virus, it's a type of virus, and the sars-cov-2 sort hasn't been around for a very long time.  Are you perhaps thinking of sars-cov-1?

I hope that mild versions of sars-cov-2 will dominate.  Over the centuries, that's tended to be what's happened with most of the severe diseases, both viral and bacterial, because the severe forms  kill most of their hosts, so they don't get passed on, only mutations to milder forms do.

The difficulty with modern medicine is that people can survive far more deadly forms of diseases these days, which makes them more likely to be passed on.  We also have far more travel both within countries and between countries.

Since vaccination was discovered, it has been our main weapon against nasty diseases, and the Victorian compulsory smallpox vaccinations, together with improved hygiene, were important in dealing with that disease.  Polio was tackled in multiple countries the same way, without legal obligation but with willingness, but then I wonder how many children you have to see in an iron  lung before not wanting your own child to end up in one.

I'm afraid, though, that whereas vaccination has been our main weapon for a long time against nasty infections, the anti-vax movement has undermined that, plus a selfishness that has meant not ensuring that poorer parts of the world can be vaccinated.  I suppose we can see it as nature's revenge on us for British & European invaders of other parts of the world killing lots of people with our infections, mostly unintentionally, but sometimes deliberately.  (Not only is there the infamous Siege of Caffa with dead plague-ridden bodies catapulted into a city, there are other examples without well-known names, for example in the Americas and Australasia, with indigenous peoples sometimes deliberately infected with western diseases brought over by invaders.)

That being said, 'long covid' is forcing us to face our failure to fully get to grips with postviral conditions.  For comparison, I have taken the view for decades that we should routinely be vaccinating babies or at worst late primary school children against Epstein Barr virus, but it's only now being more widely accepted that various chronic fatigue type conditions are related not just to initial infection, but to previous infection.  (For the avoidance of doubt, this is not an argument that all CFS is related to previous EBV infection.)

Meanwhile, there are people in parts of the world where they're used to routinely wearing masks because of pollution where there appears to be quite a bit of amusement over Western squeamishness over masks.  I would like to think that the wearing of masks to keep smog out of our lungs would become more socially acceptable in urban areas of the UK, where there have been shown to be links between high pollution and a range of health and behavioural problems, particularly in children.

That being said, I think that some parts of the media and key politicians have used face coverings such as niqab as symbols of 'unwanted foreignness' to an extent there's now an objection to seeing other people's faces covered that actually seems daft to  me.  When I was a kid, it was normal to wrap your woolly scarf round your face in winter, and nobody assumed you'd take the time to unwind it if you popped into somewhere on your way home from school or work.  That would be different from unwinding it to chat with someone.

Oh well, who knows which way things will go.  In the meantime, I'm now choosing between some new masks so as to get high-grade ones to protect me now that it's not realistic to rely on 'my mask protects you, your mask protects me'.  I'm having enough problems still with PEM since my last severe acute illness three years ago without wanting to risk worsening it with long covid.
Title: Re: Sunflower Lanyard
Post by: Fiz on 06 Feb 2022 05:22PM
Coronaviras is a virus, yes it's one type of virus, but it is most certainly a virus and no I am not thinking of particular strains of it. But I am not going to engage further in the pedantics of word use.


Like you, I hope that recent strains of it become milder and perhaps annual vaccines may be needed for a while. I'm not sure yet whether I will take up the offer of more vaccines but who knows. It's possible Boris will postpone ending all restrictions on March 26th but his back benchers are against it and currently they're keeping him in his job.
Title: Re: Sunflower Lanyard
Post by: Sunny Clouds on 06 Feb 2022 09:15PM
One thing I'll miss with the loss of widespread mask-wearing is the massive reduction in spitting.  You can tell youngsters that TB is one of the few diseases that can spread by airborne spread of dried spittle, but they carry on spitting not just in open spaces but in bus shelters etc. and then people are surprised that we have such high TB rates in our area.  To people in parts of the country with no clusters of TB problems, this probably seems weird to be even thinking about.

I also think in some places we'll see resurgence of the wearing of niqab, Anonymous-type masks, buffs & scarves pulled up over lower face etc., particularly on the more highly polluted roads.  You can feel the rawness in your airways along some of our busy roads with stop-start traffic, particularly near local schools and also where there are illegal road races with quad bikes and souped-up cars.  I've been barely touching my asthma inhaler during masking, but now we're opening up, I'm ordering more and may get some extras online or by word of mouth.
Title: Re: Sunflower Lanyard
Post by: Sunny Clouds on 07 Feb 2022 12:06AM
I forgot - there's another bit of PPE I rely on.  I find it helps to deal with the mental effects of a pandemic.  It's my psychological Ouch  :big_hugs: that I carry with me in my bag. 

We could debate lanyards, masks, pandemickywotsits for yonks, agreeing and disagreeing about various things, but whilst the scientists try to stay up to date with what we do or don't need to do to keep a virus at bay, and whilst we try to keep up to date with their advice, the OTH (Ouchtoohug) device helps to protect the mental state.